Our vision:
To cure all children with rare diseases - worldwide.
Our mission:
to establish a global alliance in order to identify the genetic causes of rare
diseases and develop effective treatments, following a three-stage approach:
recognize, understand, cure.
Our Values:
Care-for-Rare builds bridges between doctors, researchers, patients, political
representatives, business, the media, and the arts. Every child should have access
to medical care, regardless of their ethnic, religious, or financial background.
Care-for-Rare America and the Care-for-Rare Foundation comply with both national
and international guidelines for the work of charitable organizations.
Our Strategy: Care-for-Rare’s funding is divided into five main areas:
The Care-for-Rare Alliance comprises a large network of physicians and scientists. They work at academic pediatric centers or basic science institutes supporting the foundation’s mission, treating children with rare diseases, deciphering the causes of diseases and developing novel therapies.
The Care-for-Rare Academy program supports fellows from all over the world to learn about diagnosis and therapy of rare diseases.
The Care-for-Rare Aid initiative grants allow individual patients to get access to modern genomic medicine – throughout the world. Even if support of patients is not the cornerstone of the foundation’s strategy, there is an urgent need to provide help for patients in less privileged circumstances.
The Care-for-Rare Foundation offers prestigious awards to support young clinicians and scientists to initiate a promising new research project on rare diseases.
The Care-for-Rare Awareness initiative recognizes the need to increase attention, understanding and appreciation of the public towards the special situation of children with rare diseases. A special focus is placed on educational aspects and early diagnosis programs.
